This is one of the hardest things with this illness. it gives you the illussion that you can do things that in fact you can't.

If you are paralyzed, you know you can't run, and you are not even going to try it.

If you have MG, you know that you can run, but if you do, you may end up in the ICU. It takes an enormous amount of self-discipline not to do what you want or need to do, even though it seems you can.

many tiimes physicians, and those around you are extrermely unhelpful in this. because you don't only have to go against what you want to do, but also against what others think you can easily do, if you only try hard enough.

it's a learning process, and eventually you have to learn what you can', and can't do and when. and also take into account that every now and then you are going to do more then you can and crash, or less then you can and miss something you could have done. it's impossible to always be right.

this is part of living with this illness. and there are unfortunately no short cuts in that.

hope you feel better soon,

alice