Hi. I had to look up your disease to know for sure what it was!

It sounds like it only affects the shoulder/arm area. Is that correct? It's a peripheral nerve condition, like Guillain-Barre. Anything related to the peripheral nerves might benefit from sublingual methylcobalamin (B12).

Not exercising correctly? That sounds like a doctor out of his league.

High intraocular pressure is not MG-related. Have you been to a neuro-ophthalmologist for assessment? When you close one eye, does the double vision go away? It does in MG and is called binocular DV.

When your symptoms began for Neuralgic Amyotrophy, where exactly did they begin? Did they do genetic testing to figure out for sure that's what you had? Sometimes they do get a diagnosis wrong!

MG is all about muscle weakness that gets worse upon exertion and relatively better with rest.

I think maybe you should consult with an MG specialist to make sure about what is going on. I hope you can get answers!

Annie