I was told that Mestinon also helps SOME fibromyalgia patients. Also Mestinon helps for autonomic dysfunction IF it's autoimmune based. It may help other things too but typically (IIRC) docs only know of it being used for MG. The fibro usage is still sort of experimental and certainly off-label.

Stupidly, there was a neuro who thought I was a hypochondriac. They often do immediately if you have a "fibro"/chronic fatigue diagnosis. I could tell even though he was still TRYING to be kind of nice about it. (At least he tried and didn't cut me off. But I found him to be too rigid in his thinking.) He wanted to be honest too and said that he's seen plenty of people who abuse Mestinon! Apparently some idiots want that weirdo lightheaded feel? That's one of the side effects I hate, I hate them all and cannot tolerate most medications. So, that's frustrating. I mean, I think docs should be aware and try to keep meds away from abusers, but I (and others) are trying to get help and those people make it harder on us.

Actually I'm guessing that people who don't need it get a different effect than I get. That's pretty desperate if they are having fun with Mestinon, can't they just have a beer? LOL.

Then of course some believe we are just getting a placebo effect, and don't really need it.

And I think there was something else I wanted to say. Oh well.