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Member
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Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
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Member
Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
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I had thymectomy last December. Mine was necessary because I had a thymoma.
My MG started out as ocular in July '09. Experienced more generalized weakness and minor crisis in November '09. Had 4 plasma exchanges prior to surgery in December '09. My thymoma was Stage IIa and I had to have 25 radiation treatments. My ocular symptoms were the last to go away after surgery. I tapered off Prednisone in April '10. I have been just on Mestinon since April. Recently I've noticed mild ptosis has returned to my right eye. Don't know if it's due to the summer heat or what? Just hope the double vision doesn't return.
With all the other issues your husband is dealing with, I'd definitely weigh your decision carefully regarding the thymectomy especially since there is no abnormality with his thymus.
Hope your husband gets some relief soon.
Last edited by KathyV; 08-06-2010 at 09:29 AM.
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