WG, It depends upon what the neuro meant by "abusing" Mestinon. Do they take too much without speaking to their neuro? Take it too soon? None of us can "abuse" it without a prescription and that is the responsibility of a neuro. Sounds like a lot of passing the buck to me.

I have absolutely no side effects of Mestinon and am on 90 mg. every three hours. For me, it is a great drug. Others have bad GI side effects. When used appropriately, it is a good drug.

Have you tried writing down your symptoms and when you have them? You may begin to notice a pattern. Have you taken photos of your face, like in the morning and then after activity or towards the end of the day? Have you seen a neuro-ophthalmologist to assess your eyelids, vision, etc? Do you have any breathing issues? If so, have you been to a pulmonologist to assess that?

It helps to start with symptoms, classify and clarify them and then go to a doctor with it all delineated and written down. Sometimes it takes going to more than one doctor to get answers. Do you have a primary doctor who can talk to you about possibilities?

I hope you can find answers to what is going on.