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Member
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Join Date: Jul 2010
Posts: 458
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Member
Join Date: Jul 2010
Posts: 458
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No, that does help a lot... thank you. The only thing I don't understand is this... that all makes sense.. but I was told at Mayo that I have large fiber PN and that explains why I have motor and balance issues along with the sensory issues. I do have a lot of issues with balance... and I also have problems with my feet 'disappearing' on me. I don't know what else to call it.. but I lay in bed and suddenly I don't know where my feet are if I'm not looking at them. I can't tell how far apart they are, if they are touching, if my legs are crossed, etc. It only happened in bed until recently, and now it happens when I am walking if I walk too much and my feet go numb--my feet feel like they melt into the carpet and suddenly I lose sense of where they are altogether. I was told that was a part of motor issues, not sensory. Is that incorrect?
I really appreciate how you broke it down for me--thank you very much!
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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