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Member
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Join Date: Jul 2010
Posts: 458
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Member
Join Date: Jul 2010
Posts: 458
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Okay, thanks... I'm just so confused because they told me at Mayo and at my neurologist's office that it was large fiber neuropathy that I had, not small fiber... and I just concluded on my own that I had to have small fiber as well because I have ALL the symptoms, I just didn't have all the correct tests for it... but what I posted came directly from the report from Mayo--yet they told me I had large fiber, not small. I don't understand that... I'm going to call on Monday (both places--Mayo and my neurologist's office) and see if they can send a report (in simpler terms, like large and small fiber neuropathy) of the diagnosis of what they believe I have as well as what they have suggested for treatment thus far for my records. I'll see what they end up sending me...
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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