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Old 08-06-2010, 06:38 PM
tvoss123 tvoss123 is offline
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Join Date: Aug 2010
Location: Michigan
Posts: 1
10 yr Member
tvoss123 tvoss123 is offline
New Member
 
Join Date: Aug 2010
Location: Michigan
Posts: 1
10 yr Member
Default I have had GN a long time.

Quote:
Originally Posted by semcsquared View Post
Curious if anyone else here has it? I've had difficulty finding other GN folk.
Hi there,

I have had GN for 17 years.I have been on 1200mg of Carbatrol for nine years and have developed more side effects and pain in spite of it. Now I am faced with the surgery. My question is about the results of the surgery. At Mayo Clinic, they plan to decompress and sever the nerve. I am concerned about what I will lose besides the pain. Has anyone had this surgery with the nerve being severed? As far as I have learned in reading, the nerve goes to the tympanum, controls the bitter taste buds at the back of the tongue, and goes to the pharynx that aids in swallowing. The taste buds will die, and I don't know what else will happen. Will I no longer be able to swallow? I have the surgery scheduled for next month, but need more answers.
Thank you,
Tammy
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