I quit the first 'do nothing' neuro, and the second was going in super slow motion as to diagnosis. I sought a third opinion from an area teaching hospital? And got the head of the neuro dept! On a cancellation no less!
He looked at me, had me do the standard 'close your eyes' test, etc and immediately zeroed in on diagnosis [w/o telling me] but, ordered a battery of blood tests and f/u MRI's, X-rays, Nerve conduction tests [done by neuro #2's staff] and spinal tap. All came out to CIDP. Ruled out were 'West Nile', Lymes and a few other 'regional peculiarities'. By going the extra step? Being consistent in what I related, how I related progression and bringing all my prior test results with me to doc #3? I got DIAGNOSED! Now over 7 years later? I've received far better treatments and medical care than I ever expected!
I am saying this because? #1 I'd likely be totally incapacitated now or dead without the treatments & care I've received; #2 Never take NO for an answer-ask what if?what else?; 3# Sell yourself and your case to get second opinions if you can and as best you can! Now, that doesn't always mean going straight to the Mayo or wherever? Web up http://health.usnews.com/best-hospit...d-neurosurgery And find the best you can where you live!
Try this route? It just mite help you! Especially IF, [as in my case?] it's getting worse! What have you got to lose but your life? Hope and 's - j