I am a Lyme survivor. I did not get traditional GBS, but I went thru a period of horrible neuro things going on and was told it was Fibro....it took 10 years after my Lyme diagnosis to be diagnosed with PN, and I also get IVIG.

Now my ANA is highly positive, not due to the IVIG, since it is + for years past the half life, so, I am stuck with some immune junk.

I wonder, have they considered IVIG for you?? It would be worth a try. IT is a FIGHT, with docs and insurance, but in your case, so young, you are a good candidate for it, if there are no other contraindications.