Quote:
Originally Posted by darcy28
Hello,I'm new to this forum.
I hope this makes sense and hope I posted in the right place.
I'm not myself of late and since I'm not feeling so hot I hope I can make this short and not ramble.
I was told I had PCS and to make an appointment with the neurologist.
Can anyone give me some advice on what questions to ask and what to expect for my first visit?I would greatly appreciate it.
I am feeling anxious about the visit as I don't know anything about this condition.
Some of my sypmtoms are:
I can read,but slower than normal and can only read outloud for about one sentence then have to stop.
I can't take moving objects in my eyes view and am sensitive to sound and light.
I have dizziness,lack of focus that comes and goes and feel shaky but my body is not moving.
I have difficulty with even the simplest of household tasks:laundry,dishes.
Overall I feel like I'm "off" and just not right.
My injury was due to an accident.I was hit at the top of the head with a door while bending down.I've had two CAT scans.Should I ask for an MRI too?
How long can this last.What should I do if it goes on and on?
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I disagree with Mark about the neurologist. While it may be true that there are many bad neuros out there, the one I saw was amazing!
He knew exactly what kinds of problems I am having and asked the questions that would prompt me into bringing up those problems, so if you could make sure to find a good one then it might really help!
Now as far as an MRI, my neuro and my primary doc had me get an MRI of my head and neck and also an MRA of my head. It all came back normal.
When you see the neuro, if you have trouble remembering things on the spot write down every sort of problem you are having. When those problems occur, what causes them, what makes them better, what you have tried to help you deal with them, any medications you are on, any allergies you have had, any testing you have had done since the accident and maybe even before (the nurses in the office will be able to say what he wants to see).
The more info he has the better. When I had my first appt I had been dealing with headache, nausea, dizziness, struggling with thinking straight, sensitivity to light and sound, and all these would be triggered in a very bad way if I raised my heart beat at all.
Well, he gave me a medication to deal with the headaches (my most troubling symptom) called Fioricet and it is amazing! I have to take it before the migraine begins and then I just take another whenever I feel it coming on. I have two more weeks at home before I go back to college, so I am experimenting with how little I can take and still be OK until bed.
I say try the neuro, making sure he is a good one with lots of PCS experience, it won't hurt too badly
and it might help a lot.
Good Luck!
Margarite
PS: He also said that reading for fifteen minutes a day and then quizzing yourself or having someone else quiz you on a few details from the reading will really help concentration and memory problems.