Quote:
Originally Posted by firegirl
I vomit about 5 days a week. I take lots of nausea meds. On days I don't vomit I am still very nauseous. Went to a GI doc about a year ago & had some tests run. They came to the conclusion that the RSD had spread to my stomach. Anyone else struggle with this?
|
Firegirl, I'm sorry to hear of your RSD spreading internally. I have had severe RSD in my left foot for 4 years now and understand how mind numbing this disease can be. I have three suggestions for you and will pray they work for you so you may feel some relief. 1) The best medicine for the nausea from pain I have found to be Zofran. 2) I don't ever like to answer any of these things with a pharmaceutical answer. That being the case I would discuss in detail with your pain specialist the proper diet to have with your condition. You'll find this will at the very least lessen your nausea. (I am praying) 3) I ended up in the ER 3 weeks ago two nights in a row with pain so bad I seriously wanted them to amputate the foot and I would take my chances with phatom pains. Fortunately, a procedure we'd been researching for two years and begging to get into the trials of, was recommended to us in the ER. It's a Kedamine induced coma. I was placed in a coma for about two days while they introduced the Kedamine to my system as well as performing a rapid detoxification of my system. I never realized that pain medicines can eventually turn against you and cause you even more pain. I won't lie to you. There are side effects such as short term memory loss (I don't remember the entire week before I went into the hospital), some holes in long term memory, vision impairment and some dexterity issues. Most of these are short term and you'll get them back. The only thing hanging over me now is the loss of memory, which is certainly a rather odd feeling. The good news is however controversial this treatment may be, I am currently in remission with about 90% of my pain gone. I am walking for the first time in two years without a cane. I HIGHLY recommend looking into this procedure. It scared the hell out of me, but I am so happy to be without pain for as long as this will last. Take comfort in knowing that this disease is one of the most studied diseases at the moment and many new trials are be conducted all over the States. Doctor Ian Black brought the treatment to Vermont from Texas and I was the third person to ever have it done here. I hope some of this help you and you'll be in our prayers. God Bless.
General