Originally Posted by coffeegirl

1) How many of you had severe vertigo when you first were dx'd?
2) Blurry/Double Vision? Daily? YES
3) Either wake up with chronic fatigue (so severe you feel like you
have ran a marathon 5 times. Or it begins in mid afternoon
after you start to do things or run errands/exercise? YES
4) Problems trying to urinate? YES
5) Problems walking/balance- other than vertigo. YES
6) Severe Migraines (MAV-dx) with inner ear dysfunctions
7) Two clear MRI's in last 3 years
8) Current regular Neuro and Neurotologist sending to dizzy clinic.
Gave symptom list to secretary. Instead of setting up appt. in
3-4 month normal appt. time- she put me on the current asap
waiting list. This freaked me out.
9) Sense of smell is almost gone. No clue with this one.
10) Tremors/numbness in hands. YES
No clue what tests results came
back for sure as been told opposite things from two doctors.

Any advice? Feel like I'm clueless: really. No idea what is going on and no one will give me any answers. Very upset. Hubby is very angry with life like this- he has had it. I am not able to function like a normal person anymore. Basically- I'm disabled. He is having a hard time coming grips with it. I'm not sure that it will ever be back to normal again and if not, if he will accept it.