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Old 08-11-2010, 11:34 PM
keep smilin keep smilin is offline
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Join Date: Aug 2009
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10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Help I am sorry....

Quote:
Originally Posted by MysteryPainMom View Post
My daughter started physical therapy about three weeks ago. Today when she was there, she did weight bearing exercise for the first time. Before that, she did leg lifts and other floor type exercises. Today was the first time she used machines. Tonight she is having a flare. Her pain level is much higher than it usually is even at night.

She still doesn't have a definite diagnosis, but I am convinced that she has RSD. She has all the symptoms, as I have discussed here before. The diagnosis that the doctor put on the prescription for PT was "sensory polyneuropathy." He has told me that it is just as likely that she could have RSD, but that the treatment is the same. Since it didn't say RSD, I am afraid that the PT may not be familiar, or may not be treating her in a way that is helpful for RSD. I know that some things can make matters worse, and I have been trying to not let that happen while we are still trying to get a definite answer about what she has.

Can anyone else tell me what their experience has been with physical therapy? Is it normal to have a flare after PT? Is this a sign that she should slow down?

Thanks!
Dear Mom..I am sorry for the PT flare... My orthopedic surgeon did send me for an aggressive PT schedule..everyday for two weeks ~ 3-4 hrs/day.. It was quite painful, tears to my eyes during every session..and it was driven by a protocol used only for RSD patients..in order not to cause further damage..As far as the flare can't really say because I seem to have constant flare..8-10 pain all of the time.. No less.. but still smiling..Talk with the PT personal in order they are following guidelines for RSD patients....

Hugz, Kathy
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