Quote:
Originally Posted by imnotcrazy
Small discovery that encourages me that the root cause of my ongoing problems is in my ear: I just had a cold, and while recovering from the cold I was stuffy and congested for a couple of days; they were the best days I've had since I hit my head. Balance and equilibrium were noticeably better. I was comfortably staying awake longer and even had a bit of an appetite.
This encourages me that I'm on the right path in pursuing middle/inner ear problems. Is there ANY other explanation?
Waiting to hear back from an ENT who will review my previous CT scan looking for SCD, and arrange a new scan if the old one isn't detailed enough.
Aside from SCD, are there other things that the ENT should be looking for?
Thanks!
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Your experience is very similar to mine, when the ear is plugged up the dizziness, nausea, balance, eye blurring, and fogginess are much better/almost gone. I had the CT scan for SCD, they have to be done right to properly diagnose or rule out. My doctor instructed:
"Ultra high resolution CT scan of the temporal bones (0.6 mm cuts) with axial, coronal, and sagittal reconstructions. W=400, L=900. Evaluate for superior or posterior canal dehiscence"
Thankfully they were negative. I was diagnosed with a Perilymph Fistula.
The doctor I'm working with is trying something called a "blood patch" (they take blood from your arm and inject it into your middle ear then let it clot to try to stimulate healing). If this doesn't work, they consider surgery. My patches don't seem to be holding so I wonder if my injury was too old when we tried it (8 months out). I'm speculating on that.
I know I'm on the right track though, because when my ear is full the symptoms are markedly improved. After the last patch (I've tried it twice), even when my ear drained, I felt almost normal until the patch broke. Right now it is better than before the treatment but the symptoms are still there. I'm out of the US so won't be able to see the doctor again until mid autumn, so I have to be patient until then.
If you read over my previous posts you'll see that this wasn't the only issue, I had brain, hormone and neck stuff going on and I've worked from several different angles with a great neurologist and chiropractor. The ENT I'm working with told me that some of my eye symptoms are brain related and not the ear problem. I'm so much better now, it's been almost a year since my injury. Hang in there and don't give up, no one here thinks you're crazy!
Best wishes!