I agree with both Mark and Margarite. I've had a terrible experience with a neuro who told me I was making it up and then found a fantastic neuro who has helped me tremendously. I would check the online doc rating sites and look for a doctor who listens and cares, that goes a long way. Call their office and ask if they have experience treating PCS, how many people they've treated etc. If I'd done that from the beginning I would have spared myself an awful experience. I know it's really hard to do all the leg work but it's worth it.

They will do a basic neuro exam, which I passed because it didn't check the areas I had problems with. The PCS symptoms are subtle to another person/someone who doesn't understand. It seems like some doctors just don't want to work with you if you don't fit into a certain peghole. You don't want that type of doctor for this kind of injury.

I had to write everything down because I knew I wouldn't remember, plus I had a hard time answering questions, my brain couldn't connect with my mouth properly. With my type of insurance it has been a lifesaver to find the good neuro because he's been able to get me other referrals and prescriptions I needed. It seems like many of the PCS symptoms heal with time, rest and good nutrition but there are others that are helped along with other providers and medication, different for different people.

Best wishes!

Becca