Hi all,,, I am Tess. Newly diagnosed with GPN but have sufferered for at least 3 years with it. I am a Righty with the pain focused under my upper tongue and my back teeth and gums and right side of the throat. I kept running to the dentist thinking my teeth had cracks in them. Spent more money than I care to recall getting unneeded dental work done. Finally went to a root canal specialist who tentatively diagnosed it and recommended an MRI and a trip to the Neurologist. Geez,,, guess what happened? I went into remission for a year. I nearly forgot about it. Met the love of my life, had a beautiful Grandaughter. Many blessings! Now I have been in hell for 2 months. My PCP was beside himself and clueless. It took a month to get in to see a Neurologist and she said "You have a very rare disorder and there isn't a whole lot to be done other than medications." <Yes, I waited a month for that.> I will have an MRI on Monday. Very low dose Tegretol because it makes me very tired and dumb and I am trying to keep my job. What a life! I have had a few good days in a row and am praying for remission.