View Single Post
Old 08-12-2010, 01:19 PM
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default

What I would do-
You only get to do this once - going onto meds - so
I'd think it through. Is there an option with mucuna? Aminos and precursors? Bs? I'd try each one for a month.

If more is needed, i'd go for the sinemet, not the agonists. Sinemet has been around 40 years. The surprises are over.
I'd learn about protective things like lipoic acid, l-carnitine, resveratrol, etc.

I'd take as much as I needed, but i'd try to skip days often to try to prevent dependence.












Quote:
Originally Posted by trixiedee View Post
I'm at the end off my tether with this dis-ease, this week I was due to take my kids away for a camping trip - our first holiday since I split from their dad 4 yeaars ago, but had to cancel because I'm too weak to walk any distance. I can just about drag myself around my house but that's my limit. I'm sick of life passing me by, I can barely hold myself up to type this. I am taking bucketloads of supplements, eating a very healthy diet, doing yoga, having acupuncture, craniosacral therapy, massage, counselling etc but am still sliding down. I am so tired all the time that I have no energy for exercise except very gentle yoga (but get high as a kite when i'm yogaing).

So I'm thinking seriously about starting meds - I can find very few positive stories about DAs so Sinemet seems to be the best bet. Am I right in thinking that it is possible to keep it on a low dose and keep that dreaded dyskinesia at bay for longer? Any advice would be gratefully received.

Aaaarghhhh!!!

Trixiedee
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moondaughter (08-13-2010)