Welcome AkMommy,
Your story is close to mine too. We all are unique. I hope it is not MS, but if it is, you will gets lots of help and support here. It is hard having all these problems and not have the answers you want and need to explain them.
I hope you found out more on Thursday's visit.
Maybe you will have to have more testing. It takes time once they think they know what you have and what you don't have. I wish you lots of luck. Keep us updated.
Nice to meet you.