View Single Post
Old 08-13-2010, 12:36 PM
smae's Avatar
smae smae is offline
Member
 
Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
Member
smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
Default

Quote:
Originally Posted by Sheltiemom View Post
Having been through a fair number of doc appointments since this began in January (realize there are those of you who've been doing for a lot longer), and m about ready to jump off this merry-go-round.

Sorry for probably repeating myself, but I was unable to tolerate the usual suspect meds (gabapentin, Lyrica, etc.).

So - does anybody here honestly know whether or not there is anything other than those meds that will take the edge off small fiber sensory neuropathy?

If there isn't, then I'm done paying co-pays if neuros/rheumys can't do anything else for the SFSN and things stay stable. About mid-way through this search, I had a pain management neuro tell me, quite honestly, that he couldn't help me. He didn't keep taking my money, and I appreciated that.

Thanks,

Sheltiemom
Have you tried Topamax, Amitriptyline, Tizanidine, or Cymbalta? I've been on all those except Cymbalta.
__________________

.


♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
smae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sheltiemom (08-16-2010)