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Old 08-15-2010, 02:37 AM
multimom3 multimom3 is offline
Junior Member
 
Join Date: Aug 2010
Posts: 8
10 yr Member
multimom3 multimom3 is offline
Junior Member
 
Join Date: Aug 2010
Posts: 8
10 yr Member
Default non-programmable vs. programmable

OK...my son has had a standard shunt for four years- since he was 12 weeks old. We loved his nuero but moved from the east to the west and have now found a new dr. He wants to change it to a programmable. He says that Cole's ventricles are slitted, however, he did not run a current ct. He based this on his scan from last year, but his east coast dr. said they were enlarged (due to an illness- he's very suseptable to ventricle changes when sick) and returning to normal. So, large for one dr., too small for the other. I know his previous dr. was not a fan of the programmables, and the new one is not a fan of standard. We really don't know what to do. He says that we have to change it within the next five years, (although he really wants to do by the end of the year) before the brain gets used to the "under" pressure. He said that we could look at blogs of people with standards (adults) and find out what we needed to know, but all i've found is negatives about the programmable. We are definitely going to ask for a repeat scan.

Anyone switch from a standard to a programmable? Do you like or hate it?
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