MG Mom, does she have Hirschprung's? I'm still suspecting that there is SOME problem with gluten at work here. Even without a positive CD diagnosis, the malnutrition caused by a gluten sensitivity can cause muscle weakness, which will have been made worse with the muscle complications of MG.

I'm with you - fundoplication is the LAST RESORT; it's going to affect your daughter's ability to absorb nutrients. Since it sounds like she is already having problems with that, you want to avoid that whenever possible (fundoplication is also done at the same time as a G-Button is installed for people who have to have a long-term feeding tube put in).

I hope you are able to find answers soon!