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Old 08-15-2010, 04:37 PM
Sheltiemom18 Sheltiemom18 is offline
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
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Maybe it's just a transient mood that's just hit me. But I've just read the new thread by Mite, and can really relate to it. Now I'm feeling basically fed up with chasing around to neuros who keep on ordering tests that turn up normal, but really don't have a clue as to how to handle allodynia which is the very best medical term for describing my particular SFSN. Don't want to do it anymore. Period.

If this SFNS/allodynia has everything to do with the Sjogren's Syndrome, then so be it. There's no cure for Sjogren's Syndrome, so trying to eliminate the underlying cause of the neuronopathy is useless. But thankfully I'm not desperately ill with Sjogren's like so many others are and/or with the crossover autoimmunes that can develop along with it such as lupus, rheumatoid arthritis, Parkinson's. And 10 - 20% of Sjogren's people develop lymphoma.

It's not that I'm giving up; there just might be nothing that can be done for this allodynia.
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