Lurking, I actually do not have PD, I have segmental spinal myoclonus, they put me on the mirapex and kept upping the dose to where I have been on the max dose 1.5mg q 8hrs. I was having "blinking out spells" short periods of time where I knew I was missing parts of time but didnt realize it until a few minutes after I came back. this usually happened about 1-2 hours after taking the mirapex.
Not sure what he was seeing but at age 55 he stated "you are to young to have these kind of changes" He doesnt feel the mirapex is actually doing any thing to stop my leg as my leg is still going but that it is hampering getting the epidural drugs out of my system. he had seen a mri of my brain which he thought he had requested the recent one but it was actually one from 2003 when I was in car wreck. I had brought with me my copies of the new ones he had wondered why werent done(long story) but with seeing the new ones he just said "it was changes from the meds" and he wanted me off them asap. My first 24 hours dropping from 1.5mg tid to 1mg tid went fairly well until hit hour 28 I was walking down hall at work and it suddenly went like a finger painting and swirlled in color. it felt like someone drove a spike through my head. I could look down in front of me but if I looked out the world became a bad finger painting. I called PCP and nurse said to take 1/2 mg and see what happened after about 3 hours I could see at a distance again. As the week went on it became less of a headache literally. Last thursday my leg did cramp up and ended up taking valium and tramadol to pass out as I couldnt take the pain.
I am now on week 2 of the step down as of today and only taking 1mg bid. Had a headache but just took tylenol extra strength and it eased enough to tolerate. So today hasnt been to bad. Leg is clenching harder so think probably there will be a cramping spell to come. head is doing better, part of the problem i have been having is that my right eye from time to time will get double vision and it is cockeyed across not side by side but at angle across my straight vision. this has been going on since the "fly vision" when they tried to put me on lyrica.
I am eating my fava beans and until I get a reason that I shouldnt then I will continue but MDS did not say I shouldnt be eating them. Not sure if it is related or not but since started the beans I have not had a bout of my liver dumping a ton of bile into my stomach so that alone is a blessing.
Hope this helps if I can get an answer as to what the changes are I will post them.
Good luck and God Bless.