Some things that I have found helpful:

Soft fluffy socks with all the elastic removed and which are soaked in laundry conditioner in a sink after every couple of washes to keep them soft. We also tumble dry them to keep them fluffy. (I have had RSD for 8 years and it's very severe and full body. I can't stand anything tight, especially on my legs, arms and neck).

Silk duvet. This was really expensive. However, the silk duvet is far lighter than normal down duvets and is really warm. Although I find it almost impossible to let the duvet touch my lower legs I can let it touch my thighs whereas with a normal duvet I can't bear it at all.

Very soft fleecy blanket. This blanket is very light and was very cheap from primark. Over time I have gained quite a few of these blankets and even gave one way to a woman I met in hospital who had RSD in her leg and the blanket was the first thing she'd ever been able to bear on her leg. It is very soft and very light. I now have a range of different colours and sizes.

I have a large range of pillows and one of my favourites is made of Tempura foam and is sculpted to support my neck. I also have a body pillow. I have a lot of pillows in bed and use them for positioning so that I can lie in a fully supported position with pillows under my head, shoulders, arms, knees and feet.

Microwavable bean bags with lavender.

Splints to stretch out some of my joints - they are painful to wear but less painful than having bony contractures broken.

Pyjamas - like many of you I find pyjamas really comfortable. I tend to wear pyjamas from Primark as they're cheap, made of soft fleece and I can cut the bottoms off of the pyjama trousers. There are no cuffs on the pyjamas which makes them more comfortable and I can tolerate them better.

I find any bumps in wither my wheelchair or the car agonising and the pain often makes me pass out. I therefore wear a neck brace when I'm in my chair as if my head is kept still I'm less likely to pass out (and I have very little head control anyway). Even before I lost control of my head I used to wear either a soft neck brace or a neck cushion when travelling as I found it reduced my eye pain, headaches and back pain that normally worsen significantly whilst moving around.

Smelling salts which we can use to bring me around if my pain is too bad.

A mixture of emergency medications including rectal diazipam, oral diazipam, oramorph, oxynorm and ketamine with permission from my pain doctor to increase if the pain becomes unbearable.

Leg warmers - I sometimes wear these as my legs are almost always ice cold. My favourites are almost a metre long and bright yellow. We removed the elastic from inside the leg warmers and I wear them over my feet and up over my knees.

When it's cold I use an electric "sheet" which is like an electric blanket but instead it is a mattress overlay. It can sometimes really help.

Aqueous cream can sometimes help with the itching feeling I sometimes get, especially on my legs. Needing to itch but not being able too because of pain can be awful. I find that if we just chuck on huge handfuls of aqueous cream then it not only stops the itching but also helps keep my skin hydrated.

Ipod and book. If I'm travelling I HAVE to take something to read or listen to with me as it works as a distraction. Audiobooks are fantastic for this if you have problems holding a book.

Just some thoughts.

Love

Rosie xxxx