Quote:
Originally Posted by Darren
Hi Everyone, I'm new here. I'm looking for help. I was burned last year on my forearm while on vacation summer of 09. The burns were 3rd degree. A buffet table at a very famous hotel in Las vegas blew hot steam and boiling water all over me. My right arm taking most of the damage.
I went back and forth to doctors for about a year before the pain became to much for me to handle. I had to have surgery on my right forearm to relieve the pressure on my radial nerve from scare tissues.
That surgery was a bust. My surgeon saw once he got in the damage was worse than he thought. He told me in my recovery room that I would have to have another surgery, this time take a piece of the sural nerve out of my leg.
I know may also have rsd, but my doctor told me he doesn't think so. As a percaution he sent me to a Pain management doctor. I'm taking 600 mg of Gabapentin 3x a day . It seems as though it is getting worse. Every time i pick my foot off the ground I'm in pain . I don't know what to do, It has been 3 months since the surgery.
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Hi Darren,
Sorry to here about your situation. If you don't mind me asking what part of the country do you live in? I see you got hurt in Vegas so I was just wondering if you live in the West.I only ask because I have heard from people who live in and around the western part of the country that care for RSD is not that great. I met this women who was from Colorado in NYC trying to find a doctor to help her. She was at the RSD walk in Central Park in June. I also have damage to a nerve mine is the ulnar nerve. All I can say is what I have been told. When you have damage to nerves it is very hard to find a doctor who has much experience in this area plus be aware of RSD. I know Gabapentin is the usually course of treatment but if it's not helping you need to tell your doctor. And what I have found when a doctor does not have experience in these type of conditions they just go in a direction they can understand so be very carefull. I was also told by my PM doctor that there are only about 5 doctors in the whole country who could do the job I needed to recover. Appearently many surgeons are not trained in nerve type surgeries and conditions and plastic surgeons I have discovered seem to be the most experienced with nerve conditions that need surgery. It has been very hard to find a surgeon who will try and correct my last problem after a long fight and recovery. My current surgeon is great and did so much for me but will not continue to investigate any other surgeries to correct my nerve issues in my arm. He just feels it's to risky and might do more damage then good. The dispute with me is that a neuroma might exist but can't be seen on any type of film so they will not go on a fishing expendition, they did once and honestly he was right it did make me worse.
Good luck
Gabbycakes