Quote:
Originally Posted by hemse
Ok guys, I do hate to be negative and dwell on what I cant change but I feel the need to ask this question. For those of you who have not met me before I was diagnosed with neuropathy nearly a year ago. At the time my doc told me it would get worse over a period of months and years, as it was it got worse in weeks. It levelled out but has recently started getting worse again.
I want to pick you guys brains about what I can expect, I know it might seem maudlin but if you guys are willing to talk about it then I want to know how bad it can get from your experience. I want to know if any of you have had to give up work because it got so bad? I have heard stories of people being housebound it got so bad. Has this happened to any of you?
I know there will be arguments about not worrying myself and to try and be more optimistic. Thanks to you guys I have never felt more confident about my condition as you have been a wealth of knowledge in things to do to help it. I just want to get the full spectrum of the condition so I can get a balanced view.
Another reason I am asking you is that as I mentioned earlier I have read horror stories on other websites. Left unchecked these stories will make me worry more than true accounts from people who suffer with it daily. Thanks , Hemase.
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I am confined to my bed 24/7 due to my neuropathy... and while I don't see how it can get much worse (except to have autonomic PN, which I am thankful I don't)... I'm told it will get worse... so we'll see in time what that means for me. I've only had PN since December and have been bedridden since May.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.