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Old 08-19-2010, 12:05 PM
Sheltiemom18 Sheltiemom18 is offline
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
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Hemse,

You don't mention precisely how your neuropathy manifests itself. That might be helpful for us to know.

Have only had neuropathy a relatively short time (January 2010), and really don't know how to answer your concerns about worsening.

Mine is non-length dependent small fiber neuropathy affecting the skin (burning, fabric intolerance). The burning part has gotten significantly better though not gone. Haven't been able to wear my "old" wardrobe or pants because those things feel like burlap now. It's called allodynia when something causes discomfort that shouldn't - like a soft sweater now feeling like sandpaper on the skin.

Try not to look at the WCS because it might never happen. As cycleclops pointed out, try to stay involved, social, keep a sense of humor, etc. And as most of us, just do the best you can for as long as you can. That would include trying to keep up with physical activity although it might be the most difficult thing you've ever done.

Best wishes.
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