Hello,

I was recently diagnosed with CPM after 2 years and multiple specialists. I have been looking for some sort of support group or foundation about the disease, but I couldn't find any.

My symptoms used to be only on one side of my body, but now they are over my entire body. One puzzling thing is that we (my doctors and I) can't figure out how I got it. I woke up early one morning with half of my body paralyzed. Since then I have regained most of the function, but there is some personal damage. I typically have pain, numbness and fatigue, as well as some other weird symptoms. I have more mris in a few weeks, of by bread, head and spine. I also have an appointment for an EEG.

Is there anyway to learn what I can expect from this disease? How will it progress and will it kill me?

Thanks!