View Single Post
Old 08-20-2010, 09:00 AM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default

Hi, Christopher. I'll be following your story with interest! I also failed the SFEMG but not badly enough to confirm the diagnosis, and I also tested negative for the antibodies. I also take a lot of Mestinon (60 mg every three hours) without side effects. My neurologist doesn't want to treat me with anything but Mestinon, since he doesn't think there's enough evidence I have MG. My only option at this point is to insist on a trip to Mayo.

My symptoms: weak side muscles so that it's sometimes hard to hold my upper body upright, noticeable but mild weakness in my arms, legs, and neck, occasionally achey eyes and occasional very mild swallowing trouble.

Anyway, I sure understand when you say you're hoping to be diagnosed with MG! We _all_ understand that. Everyone knows MG is horrible, but having the symptoms without a diagnosis (or treatment!) certainly is worse. So, I hope you get some answers. Please do post about your experience!

Abby
Stellatum is offline   Reply With QuoteReply With Quote