Quote:
Originally Posted by Rrae
Jackie, you and I seem so similar!
The 'Twilight Daze' was fun wasn't it! To somebody completely unfamiliar with this procedure, the description sounds absolutely creepy I'm sure!
I know it was for ME when I first was presented with this option from my doctor 2 yrs ago.......that's why I drug my feet before having this done!
I thought certainly my condition would somehow 'go away'.........nope....wasn't happnin`
From what you've described, we are pretty much a mirror image of our procedures.
In a nutshell, i have peripheral neuropathy in both legs stemming from a burning sensation that started in both knees almost 6 years ago.
Horrible HORRIBLE burning!!
There are so many factors involved that could be possible culprits.....
This is why I bounce around from this forum to the Peripheral Neuropathy and RSD forums here at NT.....
Several here are testimonials of the Trigeminal Neuralgia Forum as well.
Here are a couple of little secrets I have found useful in 'getting to know' our other friends here at NT...
Anytime you want to see Neurotalk from a broad spectrum...just click on the huge 'Neurotalk' logo at the top (Left side) of the screen and it will bring up all the forums here....also there is a 'forum jump' down at the bottom of the page (right side).....
If you want to know more info about a particular member here, such as what brought them here, just click on their avatar and a dropdown box will give you several options, one of which says "see other posts by this person"...click on that. Then I scroll down to the very first couple of posts made by the member and it will usually be them introducing themselves and explaining what brought them here.
Also, at the top of the page you'll see a 'member list'.....click on that and it'll help you in finding someone.
Oh! and another neat little 'trick' is to be able to use the 'search' feature at the top of the page. By using this, you can type in a certain 'term' or name of a medication, etc and it will bring up posts of discussion regarding your inquiry.....
....so many neat things about this place! Wait til we have another 'chatroom' party! OH how FUN! The chat lounge is at the very top of the page......
endless i tell you.  I can get completely lost in time while on here!
I'm 5 months out from my surgery, so I still feel rather 'new' and am unable to give much regarding longterm testimony.......
As a matter of fact, I believe I'm still in what has been termed 'The Honeymoon Phase'.......  .
Learnin as we go........we're like one big happy family here!
'Pain' is the common bond that brings us all together
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You see, Jackie, there is this wonderful guide who directed me through the nuances of how to learn NT with minimal frustration. She stayed by my side saying that I would catch on...... despite my obvious challenges
. That blessing to us all by way of pushing for the creation of this SCS/Pain Pump subforum is none other than RRae, aka Rae. Rae has been my guide, and she is issuing so many tips for your use of NT that she just keeps on the warm welcome side of this universe. Yea Rae.
Nah, there was never any debate about what to put in me, it was always going to be paddles in the minds of my docs, maybe because I am a patient who needed more coverage, maybe because I was known to be an athlete who would get back to it, maybe because no one wanted to have to do this again. Sure there was a laminectomy involved, but I have been cut on so many times, it is becoming old hat [a hat I want to throw away]. It did hurt just like major back surgery I have had because it was just that. But, the healing began, and now six weeks.... well, more, out, the surgical sites are not too uncomfortable. So, I just happen to have something different equipment wise than some others, maybe even more so a part of the Borg Collective, gosh, who knows?
I am recovering though, and glad for it.
One who also wants to be active again,
Mark56