Quote:
Originally Posted by Rrae
Ahh yes!
Depending on how your spine moves, you're gonna get changes in sensation.
Completely normal!
When I lie on my back, the leads press on the spine more, so thus the need to turn down the stimulation.....
You'll get tweeked to perfection my dear!
Make sure to bring this up to your Rep at your September appointment,
Jackie....regarding the feet. He can easily tweek that outta there.
Those Reps have 1,200,231 (give or take  ) different programs, and depending on how many electrodes your leads have (mine have 8 each) so with dual leads, I've got 16 electrodes to fine tune.
I'm wondering if perhaps it would 'tone down' the annoying stimulation in your feet if you turn down the pulse width/amplitute ..... I run mine as high as 45 or 50, but if I turn it way down to say 20, then i get more of a 'thumping' sensation..... I like the constant 'buzzing' moreso. But sometimes that gets annoying and I have to give it a 'rest', so i turn the unit completely OFF for awhile.....I even get a continuing 'phantom buzz' after having it on for so long.
Just play around with the different settings. That's what it's there for.....
I'm sure by now you've encountered the wonderful 'shocking' sensation by having the unit up too high and changing positions?! yes? 
BTW, is yours a Medtronics? That would be me 
Mark and Fiona have the Boston Sci's
Fiona just got TWINS!! Isn't that amazing! |
Im so glad that I asked that question, because thats a great help. At first I was ummmmmm had the leads moved etc.....But today im having a good bit of relief especially up in my 'buttocks' ahem well lower part.
My SCS is an Eon. Advanced Neurostimulation System......ANS ...my literature says A St Jude Medical Company.....Jude as in hopless cases
...I hope not
The Rep comes over from England once a month. I dont think we have anyone in Ireland. Well not that Im aware. My Consultant deals exclusively with this company I believe.
I also have two leads in my back with 8 electrodes each hence 16......so Im sure there is a lot of tweeking to be done. At times I have also turned it off because the burning in the side of my left leg was soooo bad. I have turned it up to its max, however, my rep told me not to touch the amplitude/balance key...apparently thats for him to use. I have gone into it occasionally and changed it up/down
but as its early days I dont want to mess up my programmes at present and will be 'patient'
I also get that buzzing feeling after its turned off. But Ive only turned it off twice since Ive had it implanted. It is a very relaxing feeling. I had the thumping feeling and the sizzle feeling too. Sometimes I feel as if my leg is numb to touch, but I think thats because I have it so high......... I do need to have it sorted especially when Im walking as sometimes it disappears altogether.
Like you say Rae while lying down it 'takes off'
so I have to adjust it.
Isnt it amazing how you had similiar procedure while having your implant done. So where do you have your IPG left? right? Im a Leftie
I bet Ive read that somewhere else and its just slipped my mind. Another side effect of constant pain......forgetfulness!! or is that just old age
I forget
Hope your getting a good sleep seeing as you were awake all night!!!
Jackie
