I hurts me to read of your suffering! Mine is mild compared to this!
I did have a lot of pain from 17 years old to Menopause, because I had
undiagnosed Porphyria, and didn't know what "triggers" to avoid, and I
had very severe ab pain which was usually written off as emotional.
So I know what pain is, but right now it's mild compared to yours.

Praying for relief for you, if that is allowed or welcome. Don't know the
rules for this new forum.