Quote:
Originally Posted by Mark56
Oh, Sarah Mae-
My heart aches for anyone who is SO youthful to be beset with such maladies and then to have fear of what comes next on top, followed by a generous helping of concern about credibility.
You sound as though one who, as Rae [she is a gem] has put it, has won your trust and respect, a most IMPORTANT credential for any physician. Fear you can overcome. We will help. Shots are painful at first, but the pain is not abiding, but usually shortlived. SCS evaluation, credentialling, determination will generally take a good many steps and time. Insurance and physicians alike want to feel assured the extremely expensive procedure will be likely to produce at least even handed results in the patient. As for me, now 54 days out from implant, I feel as though touched by the hand of God, much as the Sistine Chapel painting depicts.
I have written of my travails, pitfalls, victories, challenges, fears, and on and on at the following: http://neurotalk.psychcentral.com/thread117854.html
Through this I have hoped to bring to one such as you a sense of hope, promise, possibility of life anew if both you and your medical team believe this is right for you. I will GLADLY answer any questions of yours anything at all.
May all eventually be well with you,
Mark56  |
Sarah mae...
My utmost pleasure to visit with you...Funny thing happen on the way to my first post to you tonight..Mid paragragh. Boy, it was a goodie too....we lost power here at my home..so all was lost.. I don't want to keep you up all night trying disfer my chicken scratch..but I want to say first how sorry I am that you are having to suffer along with myself and fellow RSD, pain sufferers... OMG... we are made of steele... genuine..!!
My RSD began with a knee surgery, we think..possibly previously..anyway..I had a SCS implant done in 9/08... Now I want to keep you thinking positive thoughts although..my experience is not a positive one...as we all respond differently..I can't use mine as it really bothers my RSD.. it makes my pain worse.. I had further spread afterwards also..from my rt. leg over to my left leg, left pelvis, left arm and now my rt. lower jaw..I have been dx with a very aggressive form of RSD, whole body..and no pain meds for this old chick as they make me toss my cookies in a bad way...
I just want to ask you to stay well informed thru your Dr. and read as much as you can prior to making choices..I hope and pray this may be the intervention you need to help control your pain....
I will pray for you in following your best informed feeling on this issue..You ahve our support and it is really nice to chat with you..Let me know if there is more I can do for you...
Hugz and have a peaceful rest tonight...
Kathy
