Wow Sarah! You know what I was thinking as I was reading your testimony on your site......(I'm sure you've already been told this!) You've got a wonderful writing skill - you ought to consider writing a book! Just a thought

Well NOW I feel as tho I really 'know' you!
Your story is very touching and heartbreaking, but you've got such a beautiful sense of 'Hope' about you.....very inspiring!

Gosh, I've got so much i want to say! But I got so tied up with family stuff and I doubt I'll be on here much tomorrow because I've got a crazy day scheduled.
Family is SO important! I was SO happy to see that you have such a wonderful close relationship with your mom and that she's there for you and you watch movies together and everything!
I've been spending alot of precious time with my daughter - she's about your age, she's 23. She's pregnant! It's so exciting!
The baby you are holding on your Home page is wayyyy too cute!

Anyway, as you can see, there are VERY caring folks here!
Mark's thread is a fantastic inside view of his unfolding story. The day he came aboard he's brought nothing but shear joy to us all! There are quite a few people who've commented on how much his thread is helping them!

And I am SO glad to see "Keep Smilin" posted! Thank you Kathy!
I still tell people how much you and the others on the RSD forum embraced me when I came aboard. You are spot on about the 'made of steel' ! Without a doubt!

So, as you can see, Sarah, there's certainly no lack of support here!
We'll all pitch in and do our best to coach you along from what we've experienced. Just take one step at a time with this and you won't get overwhelmed. It'll all unfold in God's good Grace, and you're a woman of Faith, so we'll feed into that as well!
What matters most right now is trying to get you to some level of comfort!
I sure wish the Fentanyl patches will work for you...if your Dr is willing to prescribe them, then I'd say, give it a real good thorough try! Don't give up on them just yet! They are a whole different breed of pain med and they take getting used to.
One important thing to note is WHERE you place them on your body to get the best absorption. It differs with each person, so if they don't seem to be working, let your Dr work with you as he titrates your dose. Try them in different locations, it really does make a huge difference.
I'm so sorry about these 'lightning bolt' pains you get. That sounds much different to what I've been dealing with, which is constant BURNING pain. Just goes to show how many different types of pain people have to contend with! It just plain sux!
I just hope and pray that they figure out why you aren't getting circulation in your legs/feet causing the blood to pool like that!! And the fact that you've battled your issues from such a young age with NO explanation of what the cause is!
It would be one thing if you have had an accident or something to pin this on, but you've been a mystery case........

Well, it's very late and my eyeballs are going crossed.

I'm so happy to see you've found this neck of the woods. We will no doubt learn from YOU as well!
You are a Blessing from God, my friend.

Talk again soon,
Rae