I have one physician with whom I can be myself and speak my mind....the rest I have to dumb myself down....'I have this pain, here', instead of telling them exactly what I mean.

I have been pretty stable for a while....at least it appears that way, despite having some bad lab work...without a major crisis, they think I am fine. Frankly, I can see some progression, but, I can't put my finger on it....more pain doesn't cut it. More fatigue doesn't cut it....it has to be something they can clinically measure....ah yes.

I think I will go stick my head in a good soft sand pit today....wanna join me? The world can go on without me today.....I am communing with the ostriches of the world.