I too am new here, but not to the same problems as others. I too have TN and ON. I was diagnosed with TN over a yr ago after 4 root canals on 3 teeth. I do not think that the root canals caused my TN. I think I has TN and everyone thought it was teeth problems, cracked tooth syndrome. I do know that dental procedures can aggravate the TN.
I have had 2 MVD surgeries to fix the TN. they did find a compression. this was after many months on different drugs, wrong MRI Images, drugs quit working. finally found a near dr that did the right MRI, found the compression, did MVD and I was pain free from TN for almost 8 weeks and then came back. I did have severe pain in back of my head similar to TN from the moment I woke up from surgery. kept telling everyone something was wrong in back of head. I had a second MVD to figure out why my TN pain was back and new neurosurgeon found that I needed more padding at the outer limits. this helped stop the TN pain again. I then had a third surgery to look at the back of my head and they found my occipital nerve was shredded. they think it probably got caught in the retractor during the first surgery by how the nerve was shredded and where my first MVD incision was.
none of the anti seizure meds have helped and I am now using fentanyl and precocet for break thru. only shaves off the worst of pain.
I am now scheduled to have a stimulator placed in 2 weeks with the final placement 2 days after trial is over, if it is successful.
I have decided to try to talk about my experience in hopes that it will help others.
Easygoing