Dear Bluemom,
Please do not scare yourself with what you read - if you worry about tomorrow llike that, then you are wasting today. All of us are very different, as are our outcomes. Your TN will be unlike any other person's. As will your treatment outcomes. Some people live a full life with this condition, some are more affected - you just don't know. Many people go into remission for many years. But please, do not worry yourself needlessly with things that are NOT happening to you - that will just make you sick with worry and won't help anything - in fact, stress will exacerbate your symptoms. So please, just try to take it easy and wait to hear what the neurologist says. Surround yourself with a comforting energy, and shake off that fear - it will help you to do so. And keep talking to us, we will try to help you as best we can with any questions.
Hugs,
Lily