[QUOTE=Sarah Mae;688168]Kathy,
First of all, can I just say that I LOVE your username? What a good reminder--and one that I so much needed today. I need to push through these hard times and keep smiling. What a blessing you have been already in this one little message--even down to your username!
What an interesting thing to happen in the middle of a post! I write in my CaringBridge website almost daily--and I have started writing in a word processing program. Too many times I have accidentally closed the internet browser or gone idle for 2 hours (which is the limit for the site--then your entry goes poof unless you copy and paste it). Thank you for taking the time to come back and respond--that means a lot.
I'm sorry that the SCS has not been a good experience for you. Have you tried anything else, such as a pain pump? Are you getting any sort of relief? That would be tough to go through all of that only to find out that it does more harm than good. I don't respond to pills because of my gastric bypass surgery, so I am praying like crazy that the SCS is the answer for me. I can't get relief any other way. We'll see, I guess. Only time will tell. I definitely know that there is a possibility that it will not work for me, and though I don't like the idea of going through it all, I'm glad they do the trial first.
I hope that it works for me--but your story is a good reminder that it may not. If it doesn't work, I will have to seek out other options, though at this point, it doesn't sound like I have many. I'm curious to find out what you have tried and if anything is working for you.
Is it okay if I pray for you? You seem like such a sweet woman, and I am so thankful already for you! I look forward to getting to know you more!
Sarah Mae..I would love for you to pray for me..OMG..that would be wonderful..AND you like my used name..?? Well, it comes from my heart in that I trully believe we must hold hope and love in our hearts and begin from there... My favorite to do is share a smile or do something nice, like unexpected when others could use a life..It warms my heart... Great medicine.. simple and free!
Continue to move forward with your trial SCS and stay positive.. things always workout for the best...have faith and keep looking forward..the rest will take care of it's self... As far as myself..no pain pump, still have my SCS implant in my left hip area... but I have had many blocks and pain meds up the wa-zoo (can I say that?)..accupuncture..patches.. on and on..And my PM Dr. has sent me to Dr. S in Philadelpgia..he asked me to have the 5 day 'sleep' for Ketamine but my ins. will not play along with me so I am not even entertaining that thought..so I take each day as it presents itself, medicine free and keep smilin..the best I know how!!
You sound darling..Allow me to help you and please..there are no crazy questions when it comes to RSD!!! Its an ugly animal!!
love, Kathy