Too bad that patients are not more welcome to post on the PDOnline Research wiki. I understand why they discourage it, but the wiki would be a great way for information exchange between researchers and those who live with the disease. Some of our experiences and anecdotes may even serve as a catalyst for new ways of looking at old, outworn ideas.

There are some creative ways to establish quality control. For instance, their could be patient liaisons or reps and Rick, Ron Hutton, and Girija would be perfect for that (others too).

Thanks, Rick!

Laura