Thread: Genetic Link Discovered Between Immune System, Parkinson's Disease
View Single Post
Old 08-27-2010, 08:39 AM
reverett123's Avatar
reverett123 reverett123 is offline
In Remembrance
  
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default
Heck, if they even cared enough to assign a grad student to liason with us it would be something. The unspoken message is we don't count. Or, to paraphrase George Carlin, "It's a great big club and YOU'RE not a member!"


Quote:
Originally Posted by Conductor71 View Post
Too bad that patients are not more welcome to post on the PDOnline Research wiki. I understand why they discourage it, but the wiki would be a great way for information exchange between researchers and those who live with the disease. Some of our experiences and anecdotes may even serve as a catalyst for new ways of looking at old, outworn ideas.

There are some creative ways to establish quality control. For instance, their could be patient liaisons or reps and Rick, Ron Hutton, and Girija would be perfect for that (others too).

Thanks, Rick!

Laura
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
reverett123 is offline   Reply With QuoteReply With Quote