Dear Coffeegirl

i feel so bad for you. i am sending you some hugs right now.

i am fortunate in that, although i live in very close quarters with my parents, they are both very respectful of privacy. while i do worry about private things being inadvertently seen, if i leave them out and visible, they would never go through my stuff or purposely pick up an already-open letter, and read it... LET ALONE try to read my email. that is so sad. i am sorry you have to deal with this lack of respect for your space and your privacy.

as for the tests, there are a variety of neurogical examinations... well the initial exam tries to sort out IF there are problems, and subsequent testing is to figure out the degree and scope of the problem. when things are wrong with our head, i've noticed doctors start being very wary of what they tell us and worried about our reactions. most likely, their not telling you was an attempt at protecting you from being scared of preliminary findings which are still probably vague. they sometimes do this with other illnesses, especially where there is an "it could be serious, or it could be really simple" situation - they don't want to scare the person unnecessarily.

i would be very upset too - because i like being told things up front. one of the most upsetting things that happened to me was to be refused psych records. but i guarantee it isn't a form of disrespect, and it's probably not even a question of competence. i am sure they want to have a better idea of what is going on first, so that they can tell you something they are more certain of. you might want to let them know that their not informing you was so upsetting and that you'd prefer to be kept in the loop from now on. because not telling you things is only going to upset you more.

was the help line person helpful? it can make such a difference to hear a comforting voice.

i am so glad you came back to post. please come here and talk to us as often as you like.



~ waves ~