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Old 08-28-2010, 07:42 AM
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KathyV KathyV is offline
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Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
10 yr Member
KathyV KathyV is offline
Member
KathyV's Avatar
 
Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
10 yr Member
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I have primarily ocular too and I see you are from Ohio also.

I find that the weather (hot) makes me worse. I was doing pretty good until July hit. Also fluorescent lights make my eyes worse. When I first started with the double vision, Prednisone was the only thing that helped. I've been off it now for 4 months (after being on it 5 months).

Maybe your dosage of Mestinon needes to be changed. Have you talked with your neuro about this? I have my neuro's OK to adjust my Mestinon depending on my symptoms for that day. Some days I take 3 30mg tablets, some days I take 4. On days that I drive more, outside in the bright sun more, on computer a lot, etc. I find I need that extra pill.

Hope you find some answers.
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