Hello to a Fellow Texan!

I also have recently started treatment for Pyrroluria. I have not been tested by am going on information I have gathered in extensive literature seraches and from talking to practitioners, labs and reading everything I can find on the disorder. I also have a masters degree in pharmacology so that helps some. I have been involved with an effort in the UK to get Low Dose Naltrexone licensed on their National Health Service. As it turns out many of the disorders and some of the processes are parallel to the high oxidative stress in Pyrroluria. So that put me ahead of the curve a little, but not much!

I started out in July taking a B100 complex, 50 mg enteric coated P5P and 50 mg of Zinc Picolinate, as well as 500 mg of Natural Calm Mg Citrate. Within three days I could feel a difference in sleep and felt less anxiety, which had been an increasing problem. I have been under a lot of stress
due to unemployment so the idea that taking supplements could do this much for my sleep and building anxiety is amazing to me.

I am now to the point, 7 weeks later, of adding a few more supps, gradually,
to see how I feel. I have just received my order of Niacinamide, Biotin, Mn, B12 SL and Activated Folate (FloaPro). I have increased sources of Omega 6 in my diet but have not ordered Borage Oil yet, because of the heat.

I am happy to share the information I have gathered with you!

Please feel free to contact me privately if you wish. I can send you some of the articles I have collected and also links to video interviews with Bill Walsh who trains physicians in the treatment and who founded the Pfeiffer Center, Abram Hoffer, MD the first to treat a patient with high doses of B3 and then B6 for a mood disorder, and Dietrich Klinghardt, MD of Seattle, who finds that many of his chronic Lyme and Autism patients test positive for Pyrroluria. Dr K presented to the Lyme In Autism conference last year and the video as well as the Power Point is up in several locations on the web. He has a well developed approach to Pyrroluria and the detox that happens when you start to replace Zinc.


Janet
San Marcos, TX