Me too! I was seeing the neuro for the first time (neuro #2 of 2... thankfully I only had 1 bum doc!) after my ENT doc sent the city hospital my MRI findings from his research, and I insisted on an MRI and he agreed and sent me for one.

I remember the kind hospital nurses took in this pale, skinny, nervous wreck of a girl who hadn't slept in days and put her on the Solu Medrol drip. I didn't know what the heck was going on!.. all I knew is I could taste pennies, and I had to do this for 6 days 3.5 hours each time (eeeesh!).

During this, 11 vials of blood drawn, spinal tap (lumbar puncture), question and answer session and assessment of cognitive/motor skills.

For me, the blood drawn and the spinal headache following the LP (bad, bad Laura for cleaning house 4 hours after getting home!!) were the worst parts, other than the limbo of waiting on the results!

Ok tangent, sorry! Just sharing my experience and went off a bit there lol!

From my initial 'searching' to find answers? 2 years. I had to be 110% proactive, contacting doctors myself and doing a lot of my own research and begging for help. I had to listen to a lot of condescending "Aww, poor woman!" responses from doctors, or the 'stress' excuse.

I hope you can get your answers without too much hassle and leg work.

^^~~ Yes!!!