Sarah Mae,

What a terrible day you've had. First the frustration of not being told of an autonomic nervous system problem, for which there is no excuse whatsoever; secondly, the tragic death of your friend because of a drunk driver. Am so sorry to learn of that.

As you've probably learned from your search, the QSART and tilt table test for postural orthostatic hypotension/tachycardia are both tools for diagnosing autonomic nervous system abnormalities. The fact that you weren't informed that you had a diagnosis of POTS is unconscionable. At the very least, you should have been given the name of what you had and what might happen when you went symptomatic so you'd know what was happening and why.

You're definitely doing the right thing by going to the doctor ASAP. Don't forget to bring those records that identify POTS. If seen in black and white, it'll be "official," and you will be taken very seriously.

Sheltiemom