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Old 08-29-2010, 07:01 AM
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LordWood LordWood is offline
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Join Date: Apr 2008
Location: PA
Posts: 86
15 yr Member
LordWood LordWood is offline
Junior Member
LordWood's Avatar
 
Join Date: Apr 2008
Location: PA
Posts: 86
15 yr Member
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I'm sorry to hear about the flare up. I know what you mean they suck! You mentioned Dilaudid have you ever been on it before? I think it should do well to help you with your pain since its alot stronger then anything your currently on. Smart thinking to stay away from the ER, the ER is nothing but an add on of stress making things worse and a bunch of unless people that know nothing about RSD and cause you more hurt then help. I know all to well about being up all the time. My body has adjusted to the living dead status I've been in, I would recommend trying to get put on Xanax that will help you with your sleep issue. Hope you start to feel better and remember to hang in there. Your the boss remember to keep telling yourself that and that you won't quit! Were here anytime to rant to thats what this group is about being there to help one another!









Quote:
Originally Posted by llrn7470 View Post
I have been doing well for quite a while, but over the last 3 days, I have had a flare of my RSD and my leg is humming. I have my SCS turned up so high that my leg is actually twitching, but how can you stand that for any period of time? I broke down and had my pain MD paged last night and he was out of town and recommended for a one time increase in my Lyrica, extra Percocet, and I took extra Baclofen, but was still up all night. He said that I can get oral Dilaudid on Monday. Both of us agreed that it would be stupid to go to the ER as it was a Saturday night and that fact that they have no idea what to do with me (no clue about CRPS). They would just knock me out and send me home (at least he is realistic, which I love about him.)
I'm just done. I know that we all get to this point, but I'm done with this crap. I'm exhausted and can only sleep for small stretches at a time. My eyes feel like fire, yet, I can't sleep. He can't get me in for a block until Tuesday, so this is my life until then.
Sorry, just needed a pity party. I know that many of you are so much worse off than I am, but you know how it gets when you're exhausted and hurting.
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"Thanks for this!" says:
AintSoBad (08-29-2010), edever34 (08-29-2010), Kakimbo (08-30-2010), llrn7470 (08-29-2010), loretta (08-29-2010), Rrae (08-29-2010), SandyS (08-29-2010)