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Old 08-29-2010, 08:34 AM
SandyS SandyS is offline
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Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
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Hi Lordwood,

First, I would like to say it is nice to see you back. I am a mom of a 17 year old daughter and she has been suffering for 6 years. She is vomiting 6 to 7 times per day. She is seeing a gastro on the 9th of September, not soon enough for me, but you know how it is.

I am sorry you are suffering but there are people on this site that can give you advice. I hope things get better for you.

Sandy

Quote:
Originally Posted by LordWood View Post
I was wondering if any other RSD patients that have it internal have had there RSD cause Gastroparesis. I'm having a rough time dealing with this problem as I am forced to work with my PCP doctor and he's tried all he can to help and my current Gastro Doctor I have for my crohns is not really a person I can confide in to help me other then issues with my crohns as he does not believe RSD is real even though my PCP has spoken in person with him about it. My gastroparesis when first diagnosed with it back in 2007 was placed as mild and it wasn't to hard to deal with it was just the idea of learning to adjust. But now its come to the point it feels like a lining of thick cement is in my stomach all the time and my nausea has increased even more on top of it all ready being bad. I've been on almost all the nausea meds out there to which none helped and I've been on Reglan and Erythromycin as well which neither have worked for my gastroparesis. I just keep losing weight and the weight I do have is from the large amounts of liquid I drink each day. I have had the NG tube before and done feedings that way but the liquid just built up in my stomach and made me even worse and even started causing me to have acid reflux. I was on the NJ tube as well but even with that the feedings were not doing as well as they wanted and the tube was making me sick as well. An RSD specialist I saw at the time told me not to have the NJ tube as it would be worthless. Luckily things kinda settled if you would call it that and I was able to get away with just my liquid weight but then within the last few weeks I've been losing a lot more even with drinking and I can't stand this nausea and cement lining. Do any of you suffering from rsd also have gastroparesis?? If so what treatment are you on, I thank you for your time and responses in advance.
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AintSoBad (11-26-2010)