Quote:
Originally Posted by tchr012
Hi  jackiekennedy! I just wanted to comment about what you were saying and tell you a funny story about settings. I know about the itchy feeling you are talking about and I think it was when my incisions were healing and then after that happened, I did not feel my stim battery being there at all! But, if it is sore or feels weird you should tell your rep and doctor because I always talk to them or used to because it made me feel better to understand what exactly was happening in my body  When I had mine implanted I did not know what to expect and I also did not know of anyone in my life or on the computer that had it done so there were a lot of new sensations and experiences to get used to.
Okay, now a funny story. When I had mine implanted I went back to school as soon as my healing time was up. I was not used to the settings yet and I turned mine up way too high and ended up walking into a wall! It did not hurt but I was embarassed because it was during school on a college campus! I also have to turn my settings down when I am in the theater because surround sound sometimes affects mine, but I never have it shut off. Also when people push the heavy carts at school around me it bothers me a little but its okay cause I just turn it down. I also have to have it turned way down if I have to lay down at the doctor or when I go to bed because it is not comfortable for me and can be kind of jarring. And usually I know when I have it up to high because it is not helpful and kind of hurts so then I turn it back down again. The only time it is off is when it is in sleeper mode because the battery needed charged up again. Also, when you get reprogrammed don't hesitate to call your rep everytime you need it changed because I used to think I was bothering him but he said I was not and as our bodies heal and get used to our stim we may need stim levels adjusted also the more active I become the more stimulation I need. I think I also walked into the wall because I was so inactive during recovery that my body and brain were not used to it and went it was turned up to high my legs just wanted to keep going lol. You do get used to your settings but they will probably continue to change and fluctuate as time goes on. take care! Tara |
Hi Tara
Thanks for the giggle (oops I shouldnt really
) but I know what you mean about the funny sensations!!!.
At present my rep is based in Great Britain, I live in Ireland. So although my rep did say to me when he was in the hospital showing me how to use it, to call him anytime and he would 'hop' on a plane over! now somehow I find that a bit hard to believe. Ive only my stim in just over 3 weeks now and I do find the more active Im getting that I definitely do need adjusting. While I'm lying down I get great relief and although I have my stim turned up to the max, which isnt a lot really, I get about 60% relief in my legs and upper legs, but not so much in my lower back, which at times is excruciating......however, Im hopeful that when I do see my rep, (my Consultant said he was coming over in Sept,) he will be able to move the sensations UP and around etc
I have an appointment for a wound review on 3rd Sept...Im hoping that I will get some answers then.
My concern I suppose is that now as Im lying here recuperating after my surgery and will be for the next 5 weeks!!!! yes I have relief, but then IM DOING NOTHING (or at least not much). Will I still get that relief when Im more mobile.....when Im doing my little bit of gardening, (oh how Id love all those acres that Rae has, my garden is the size of a postage stamp) but I love it......so you see thats why I want all my settings UP UP UP........Im sure it will all be tweaked and working wonderfully if what Im experiencing now is anything to go by WOOHOOOOOOOOOO..........
