Mark in Idaho,

We are getting better in not over doing it. Before if she had a "good" day or portion of the day the we were both eager for her to do more. I like the advice to string a few good days together.

It is tough to do this even tougher when we have two young kids (2 and 6). We have been both guilty of pushing too much. I have learned to become more patient. This forum has helped a lot. I'm glad I found it.

I'm going back to work this week (teacher) and I'm going to work something out with school so that I can drop the youngest at daycare so my wife doesn't need to drive. All will she need to is help get 6yr old ready for school which should be doable.

She felt "good" last night but decided to stay instead of joining the family at the park. Today was a little better.

She still gets very fatigued and mentally overwhelmed easily. The tension in the neck/shoulders return if she does too much. I think she is getting better at ready the signs and realizes when she needs to take a break which may include a nap.

We are hoping that since both kids (and I) are back to work or school this week that life slows down for her and can do what and when she wants during the day.

We are going to ask for physical therapy tomorrow at her Primary care doc appointment. We ordered from amazon the tri-core cervical pillow.

This is the most frustrating thing we have been through and I am very impressed she is emotionally doing so well for so long.

Mike in Maine
SpouseofPCS